We are hearing from increasing numbers of health, social care and other professionals seeking resources and information to help them better support the adults with ME in their care.
The 2021 NICE guideline for ME offers clear guidance for health and social care professionals on diagnosing and managing ME along with accessing other care and support. It emphasises how specific considerations and advice should be followed for people with severe or very severe ME.
Like all NICE guidelines, it supports shared decision making between healthcare professionals and people receiving care and treatment.
Any plans put in place to someone with ME must be tailored to the individual, by the individual, with appropriate support from an ME-experienced professional. You can familiarise yourself with impact of ME by looking at the resources in our What is ME? section.
Our resources below offer further guidance for teachers, social workers and health professionals working with adults with ME.
Other useful resources include 25% ME Group resources aimed at supporting social care staff working with people with severe and very severe ME.
Doctors with ME is an association of medical practitioners, scientists and researchers in the field of ME, aiming to improve patient outcomes.
Physios for ME aims to research, educate and advocate to improve physiotherapy management for people with ME.
The British Association of Clinicians in ME/CFS (BACME) is a multidisciplinary organisation for UK professionals delivering services for ME/CFS and primary fatigue conditions. Their services map provides details of NHS and private services.
Implementing the Care Act for people with fluctuating, long-term conditions, a briefing drafted by charities including Action for ME, sets out local authorities’ key responsibilities under the Care Act in relation to people with long-term, fluctuating conditions with care and support needs.
