We're committed to driving increased research funding, more high-quality biomedical research, and bringing in more talented researchers into the ME field. Our research strategy sets out our approach to achieving these aims.
We are co-leading the world's largest genetic study into ME/CFS, in partnership with the University of Edinburgh. The study, funded by the Medical Research Council (MRC) and the National Institute for Health Research (NIHR), recruited over 26,000 people with ME/CFS and aims to find out mroe about the potential genetic cause or factors in developing ME.
Building on the success of DecodeME, the Genetics Centre of Excellence tackles the critical challenges of insufficient research funding and a shortage of researchers in the ME field. It brings together a network of researchers, charity representatives, and people with lived experience to advocate for more strategic research funding and stronger collaboration.
The ME/CFS Priority Setting Partnership completed a collaborative process in 2022 to identify research priority areas, aimed at guiding future research funding and helping to change the landscape of ME research in the UK and beyond. Through this collaborative work, the 'Top 10+ priorities for ME research' were identified.
We recognise the urgent need to accelerate research to improve our understanding of the condition, its causes, and to facilitate the discovery of new treatments. We have developed a strategy that seeks to drive progress in scientific discovery, establish new collaborations, and increase the number of researchers coming into and staying in the ME field.
Here, you can find details of research projects where the researcher has asked to promote recruitment, including the contact details of the person you will need to speak to for more details. All studies listed have received ethical approval but please note that by listing research projects here, Action for ME is not endorsing them.
