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New survey: Help inform welfare benefits reform

16 April 2025


The UK government is proposing changes to welfare benefits that could have a serious impact on people living with ME and long Covid.

We have worked collaboratively with other organisations to develop a survey which will help us respond to the governments recent Pathways to Work: Reforming Benefits and Support to Get Britain Working Green Paper, highlighting the experiences of people with ME and long Covid, and the negative effective the proposed reforms will have on them.

If you receive PIP, UC or ESA benefits, or care for someone who does, we want to hear from you!

This survey has been created by Long Covid Support, ME Local Network, and ThereForME, in collaboration with the All-Party Parliamentary Groups (APPGs) on ME and long Covid.

It’s open to residents of England, Wales, and Northern Ireland. (Scotland has a separate system and will require a different survey.)

Your responses will support our advocacy to the government for benefits that better support people living with these conditions. No identifying information will be shared.

Thank you for helping ensure the voices of people with ME and long Covid are heard.

Click here to complete the survey.

This survey has been endorsed by a number of other organisations. To view the full list, please visit one of our social media channels.

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